Butterfly Skin charity launches 304 appeal to raise public awareness

Dani is just one of the children suffering from EB

Dani is just one of the children suffering from EB Credit: DEBRA

THERE are now 304 families who belong to the Debra Butterfly Children’s Charity which is dedicated to helping those afflicted by the rare disease Epidermolysis Bullosa (EB) and is desperate to continue to raise money to investigate causes and treatment.

The charity suggested that although the majority of us have had our lives turned upside down by the global pandemic can at least assume that it is a temporary problem for most but in the case of children with EB they suffer every day of their lives.

A new campaign emphasises the need to make EB more visible so that people can really understand the reality of living with this condition and what life is really like for the 304 families that belong to the organisation.

“We want to reach out and bring people together virtually to show the reality of what it is like to live with open wounds and painful daily treatments.  There is no break from this for families over Christmas.  The wounds will still be there and the suffering continues,” commented director of the charity, Evanina Morcillo Makow.

To find out how you can help tackle EB visit https://www.pieldemariposa.es.

Thank you for taking the time to read this news article “Butterfly Skin charity launches 304 appeal to raise public awareness”.

Written by

John Smith

Married to Ophelia in Gibraltar in 1978, John has spent much of his life travelling on security print and minting business and visited every continent except Antarctica. Having retired several years ago, the couple moved to their house in Estepona and John became a regular news writer for the EWN Media Group taking particular interest in Finance, Gibraltar and Costa del Sol Social Scene. Currently he is acting as Editorial Consultant for the paper helping to shape its future development. Share your story with us by emailing newsdesk@euroweeklynews.com, by calling +34 951 38 61 61 or by messaging our Facebook page www.facebook.com/EuroWeeklyNews