Battling endometriosis – local support

ADAEC meeting, Spain Credit: ADAEC, Facebook

Suffering from endometriosis can feel distressing and isolating, but having support from those around you makes all the difference.

Endometriosis affects roughly 10 per cent of women worldwide and causes health complications including life-impacting pain symptoms and even infertility. Endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus, resulting in severe pelvic pain and can affect women of ranging ages.

With the growing awareness of the disease, support organisations have been developed, and the Valencian Community is no exception. 

ADAEC (Association of Those Affected with Endometriosis) is a Spanish non-profit organisation, founded by women who have had direct experience with endometriosis and are committed to helping others who are affected.

The organisation works with public institutions and maintains a help service online and in-person to reach every woman who is struggling with the disease.

“We are no longer invisible,” is their motto. The ADAEC organise public events, and awareness campaigns and collaborate with specialist doctors to develop coping strategies and treatment for women.

They often cooperate with the local group, El Grito del Silencio (The Scream of Silence). 

El Grito del Silencio is an association of patients and families affected by endometriosis in the Alicante province. 

The organisation focuses on providing health education to women across the region and raising awareness of endometriosis. 

They work with health professionals and the public sector: through their actions, the patients of endometriosis are given visibility and grow a better understanding of their condition. 

Events including lectures, commemorations and social meetings are held regularly in the Costa Blanca region and are announced on Instagram, elgrito_delsilencio. 

To benefit from ADAEC´s support, visit https://adaec.es/

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Written by

Anna Akopyan

Originally from Moscow, with Russian and Armenian origins, Anna has lived in Costa Blanca for over ten years. She is passionate about singing, acting and traveling.

Comments


    • OncoEspecializados

      07 March 2024 • 19:10

      Learning about the ADAEC and El Grito del Silencio’s efforts in Spain brings a sense of hope and relief. It’s incredibly uplifting to see organizations dedicating their efforts to support individuals battling endometriosis, a condition that affects a significant number of women globally. Their commitment to raising awareness, providing support, and facilitating access to information and treatment is crucial. It’s a reminder that no one should face such challenges alone. The community and support network they’ve built can make a real difference in managing this often isolating condition. At 41, understanding the importance of such support networks and raising awareness is more vital than ever.

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