By John Smith •
Published: 25 Oct 2020 • 7:01
This is a daily process for afflicted children
Credit: DEBRA Butterfly Skin
On Sunday October 25, International Butterfly Skin Day, the NGO DEBRA Butterfly Skin will appeal for help and social commitment to guarantee the social and health support offered by an organisation that has been hard hit by the Coronavirus crisis.
The campaign ‘The Reality of Your Skin’ explains how the daily lives of families with Butterfly Skin are affected: a rare and incurable disease suffered by 500 people in Spain and which is characterised by the extreme fragility of its skin.
“Lacking the protein that makes the skin resistant to rubbing and blows, they have to bandage their body daily, to protect themselves from the wounds caused by the slightest touch”, said Evanina Morcillo Makow, director of the NGO which is based in Marbella
To find out how you can help visit www.pieldemariposa.es.
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Married to Ophelia in Gibraltar in 1978, John has spent much of his life travelling on security print and minting business and visited every continent except Antarctica.
Having retired several years ago, the couple moved to their house in Estepona and John became a regular news writer for the EWN Media Group taking particular interest in Finance, Gibraltar and Costa del Sol Social Scene.
Currently he is acting as Editorial Consultant for the paper helping to shape its future development.
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